According to these guide lines I should be shielding. Page 6 of 10 Last updated: 1.4.20 How can I know if I am very high risk? Will I receive a letter telling me to shield? I’m surprised you haven’t had a letter but the administration of the system is not perfect and a few people fall through the net. Many clinical services rapidly switched to telephone consultations. Guidance for the clinically extremely vulnerable (the shielding group) ... you’ll be sent a letter offering you the supplements. If you have not received a shielding letter but are worried about your health, SarcoidosisUK would advise shielding if at all possible until you are advised that you do not need to shield. We have used the risk score below. This is called ‘shielding’. Action needed: coronavirus and identifying patients for shielding. Some groups of people are at the highest risk of severe illness from coronavirus. 7. Shielding letters; Contacts; Highest risk group. Those who will receive a letter or message from the NHS will be asked to stay at home for the next 12 weeks to “shield” themselves from catching coronavirus. If you do not currently feel comfortable going outdoors, you can continue to shield within your house and you may, if you wish, go outside. Aragog Thu 28-May-20 12:37:28. However some patients may have been missed. J1707. Please ensure that you know what treatment they are on. Definition of clinically extremely vulnerable groups If formal shielding is introduced in your area, information on how to access support will be included in your shielding notification letter. I think rheumatology.org is an American institute so maybe they have a different recommendation to the NHS (or maybe not - these replies seem to suggest some people in the UK on the same medication as myself haven't received the same letter). Moreover, recommendations for shielding or social distancing, allied with scant clinical resources, have resulted in limited access to disease monitoring with clinic consultations, phlebotomy, diagnostic radiology and endoscopy for these patients. This means you should not go to the shop or walk in public places as well as avoid face-to-face contact. The government is working on a plan to help those get essential deliveries like food. methotrexate. Work . I thought it was pretty odd, but went along with it initially. And what is shielding? In chronic plaque psoriasis, 50-70% report a good result. Thankyou - I hadn't seen that. Shielding. Do not stop any medication unless you are advised to do this by the Rheumatology team, your GP or another hospital doctor advising on your care. We know that some health authorities did not have up to date details about children’s medication and health status. Grouping How would I know if I am in this group? I have received no letters just a tx from my gp saying to stop medication immediately if I have any symptoms of coronavirus. Interesting! It makes sense for you to self-isolate anyway. We followed up 8–12 weeks later and attempted to contact 592 patients by telephone; 318 completed the question-naire, 10 declined to participate and 265 did not answer their phone. methotrexate. I received my first letter around the 9th of April and have received three more since. Which is great, as I wanted to get back to work. He did not receive an extension letter and went back to work at the hospital at the beginning of July. These will be delivered free of charge to your home. Contact your GP or specialist care provider, if you fall into one of these groups and have not received a letter. You should continue to take your medication at the prescribed doses as per the letter you received after your last Rheumatology out-patient clinic visit or consultation. Section 2: Shielding Letters. I’ve had one shielding text and one phone call from the Gp. Coronavirus (COVID-19) advice from the NHS and charities for people with conditions such as asthma, arthritis or heart disease. Methotrexate (Maxtrex, Methofill, Metoject, Ebetrex, Namaxir, Nordimet and Zlatal) If your condition falls within the highest risk group and you have not received a letter you should follow the shielding measures set out on the NHS Inform website. Dear Healthcare Professional, ... methotrexate, mycophenolate and azathioprine. Iam also confused , I take methotrexate and golimuhab injections and also medication for high blood pressure . This will only apply to some, but not all, Tier 3 areas and will be based on advice from the Chief Medical Officer. hope you get it sorted. Methotrexate 25mg weekly and over ; Azathioprine ; Mycophenolate ; Cyclosporin ; Sirolimus ; Tacrolimus ; Having in the last 6 months received IV cyclophosphamide, Rituximab or infliximab. my shielding letter was from the NHS with all my details on and not generic. I queried it with my GP and have now been put into the 'moderately vulnerable' category. i do have other medical issues which might have contributed to me being shielded rather than vulnerable. Mono-therapy would be a biologic e.g. If you are on monotherapy and have no other underlying conditions or on high dose steroids you will NOT be in the 'shielding' group. Patients looking for further information on whether their condition places them in a higher-risk category, or about precautions they should take, are advised to speak to their clinical team, who are best placed to answer specific questions. Annex 3 on page 10 contains a copy of the letter sent to patients by the NHS/GPs. Management and shielding of patients who are at the highest risk during Covid-19 incident: Letter from Chief Medical Officer for England and National Medical Director, NHS England. You should maintain strict social distancing and not go into other buildings, households or enclosed spaces. No calls from council or anyone else, but I don't need any help so not bothered. adalimumab without also taking methotrexate whereas combination is with another medication e.g. (a) If you belong to any of the groups above and have not yet received a text or letter from the government: please click here to use e-consult to let us know. Note you should not stop treatment and, if possible, ensure that you have a supply at home. Shielding letters have been sent to eligible patients. Information: This advice is for people who have received a letter from the NHS or their GP saying they're at high risk from coronavirus. the letter though makes it very clear that i am strongly advised to avoid all contact for 12 weeks from the date of the letter. Certain Cancers: … Missing shielding letter. And what is shielding? Demographics are summarized in Table 1. Please check the Government's guidance for 'clinically extremely vulnerable' people, this is the group defined by the government to potentially be the most vulnerable to COVID-19: England, Wales, Scotland and; Northern Ireland. Dermatologists’ criteria for shielding.4 Printed letters were posted to these patients, advising them accordingly. I've had two shielding letters. Those who will receive a letter or message from the NHS will be asked to stay at home for the next 12 weeks to “shield” themselves from catching coronavirus. If a patient is missing a shielding letter, please check that they are clinically extremely vulnerable and then issue a letter using the relevant letter template in the “how to flag patients as high risk” section below. For some conditions, for example sarcoidosis, you shouldn’t take a vitamin D supplement unless it’s specifically recommended for you by your specialist. You should work from home if possible. This means you should not go to the shops or walk in public places as well as avoid face-to-face contact, unless for medical professionals. My son, who is taking hydroxychloroquine, methotrexate and benepali for rheumatoid arthritis , was sent a shielding letter from the rheumatoid department that he is under at the hospital. Q. are at risk of decompensation (functional deterioration of a bodily system) during infection such as mitochondrial disease. are on oral steroids or other immunosuppressants (such as methotrexate). there’s no room for confusion. In the future, the government will only reintroduce formal shielding advice in the very worst affected local areas and for a limited period of time. His advice is discuss with rheumatology re etanercept. If you're not sure if you're at high risk, see who's at higher risk from coronavirus. I had a Rheumy consultation this week. Your employer should support you to do this. You only need to shield if you get a letter. UK News. Add message | Report | See all. Further information on sarcoidosis is available at sarcoidosisuk.org. This letter is to alert you of issues for patients with sarcoidosis who present to you with coronavirus covid-19. Reply (1) Report. The guidance on shielding and protecting vulnerable people varies across the nations. You may receive a letter from the NHS, and individual teams are working out the best way to contact patients who are definitely in the higher risk groups. This advice is for clinicians. I began shielding at the beginning of March and will continue until at least the end of June. We are unable to reissue patient letters nationally. I have not received a letter telling me that I am in the "shielding group". When given to treat cancer, the length of time for an effect depends on the type of cancer and patient response to methotrexate. Methotrexate usually shows some benefit in psoriasis within six to eight weeks; however, full effects may not be seen for five to six months. (Please also see FAQs below) 3. If you are in this group you will receive a letter from the Chief Medical Officer. @Thighmageddon I'm on methotrexate (only) for rheumatoid disease, and was sent a shielding letter. Continue with monitoring blood tests as previously advised. Many of those Shielding should receive a letter from the government in the next few days giving further information and advice. That chart would put me in the self-isolate but not shielding category. Before telephoning to request a 12 week shielding letter please check if you meet any of the following criteria: Solid organ transplants: all patients. This will help you to keep yourself safe. Prednisolone in particular should not be stopped suddenly. My GP is convinced that I am not, as methotrexate isn't on his list for shielding and he has no information about etanercept. Please see our COVID-19 guidance for the latest updates and information. The shielded patients list . shielding letter they have received. Updated 16 December You can find our COVID-19 guidance below. I inject methotrexate and humira, both immuno-suppressants, and also have asthma controlled by reliever / preventer inhalers. These may need to be carried in hand luggage, together with a letter of authorisation to carry needles or injectable pens from your healthcare team; It is a good idea to take a copy of the prescription to show authorities; Before booking a holiday, live vaccines must be avoided (see above 'methotrexate and immunisation/ vaccination'). They believe that if someone actually sent them a letter about needing to shield then this must be correct. This is called shielding. If you become unwell, you may need to increase the dose as advised by your specialist service. Interactions . NHS England has announced that it is identifying a high-risk group of up to 1.5 million patients across England, who are being asked to shield for their own protection and for whom they will provide a degree of enhanced support. No assistance off the council from what I can gather, I think they give you the number of a volunteer group to ring . 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